Auckland Down Syndrome Association 205945 http://www.adsa.org.nz en-nz Auckland Down Syndrome Association Incorporated 30 IEP Guidelines Review http://www.adsa.org.nz/webapps/i/69075/88360/318204 Please follow the link to below to the Education page where you can download the word document for review. Please refer your feedback to clo@adsa.org.nz 044, 27 Oct 2010 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/318204 Letter from the Associate Minister of Education http://www.adsa.org.nz/webapps/i/69075/88360/318236 Please click the link below to download and read the documents. 044, 27 Oct 2010 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/318236 ADSA Library http://www.adsa.org.nz/webapps/i/69075/88360/306384 The new ADSA library will be opening step by step shortly. If you are able to help with packaging, labelling and sorting, please contact the office. 037, 9 Sep 2010 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/306384 Special Education review reports http://www.adsa.org.nz/webapps/i/69075/88360/304615 036, 31 Aug 2010 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/304615 A couple's special announcement http://www.adsa.org.nz/webapps/i/69075/88360/289729 028, 6 Jul 2010 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/289729 Award-winning actor pushes for Inclusive education http://www.adsa.org.nz/webapps/i/69075/88360/289728 028, 6 Jul 2010 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/289728 invitation to Special Ed Forum- ADL http://www.adsa.org.nz/webapps/i/69075/88360/261028 Auckland Disability Law has invited Hon Heather Roy to present the Special Education Review. This is a key meeting. Click for more information. 005, 28 Jan 2010 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/261028 Teen gets drivers licence http://www.adsa.org.nz/webapps/i/69075/88360/258185 An inspiring NZ story 002, 9 Jan 2010 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/258185 ADSA Education News December 2009 http://www.adsa.org.nz/webapps/i/69075/88360/254461 Success in School, Special Education Review, Resources for loan, Storymaker Course 050, 9 Dec 2009 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/254461 IHC Education News http://www.adsa.org.nz/webapps/i/69075/88360/254169 IHC made a formal complaint to the Human Rights Commission. The Ministry of Education is preparing also and has made some significant changes. Read on... 050, 8 Dec 2009 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/254169 National Standards for students with Down syndrome http://www.adsa.org.nz/webapps/i/69075/88360/254170 The Ministry recognises that the assessment procedures for many students will not be appropriate. Instead Narrative Assessments will be used in many cases. More... 050, 8 Dec 2009 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/254170 Help with Assessment of your child? http://www.adsa.org.nz/webapps/i/69075/88360/252452 Evaluation Associates can help your family and school. This company holds a contract with MOE until the end of April 2010 to provide supports to schools and families in using Narrative Assessments. After that time, they can still support you in a private arrangement. See more information under "Resources" menu button. 048, 23 Nov 2009 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/252452 Making Inclusive Education Happen http://www.adsa.org.nz/webapps/i/69075/88360/252456 Notes and photos from the conference in September 048, 23 Nov 2009 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/252456 Experienced Carer available over the summer and limited times into 2010 http://www.adsa.org.nz/webapps/i/69075/88360/252053 Experienced and keen to work with children, youth and young adults who require support, even overnight if necessary. Comes with good references and many years experience. Uses public transport. Call Allister 846 2628 or 027 225 2224 047, 19 Nov 2009 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/252053 ADSA Numicon Kit to loan http://www.adsa.org.nz/webapps/i/69075/88360/252054 This kit is available for loan for one school term at a time, for members and member schools. Contact the office for more details. Please also see www.numicon.co.nz which has loan kits available. 047, 19 Nov 2009 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/252054 NZDSA Numicon Kits to hire http://www.adsa.org.nz/webapps/i/69075/88360/249264 If you would like to hire a Numicon kit click on the title for more information 045, 3 Nov 2009 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/249264 Excellent Courses offered by Parent 2 Parent http://www.adsa.org.nz/webapps/i/69075/88360/246374 Many of us have so appreciated these courses. The new course we would like to encourage you attend is the Advocacy Course in May. Please register early to let the organisers know of your interest. 042, 16 Oct 2009 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/246374 Miah Eades in The Herald! http://www.adsa.org.nz/webapps/i/69075/88360/227115 030, 24 Jul 2009 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/227115 Health and Disability Consultation Document- Easy read version http://www.adsa.org.nz/webapps/i/69075/88360/227119 Review of the Act and Code 2009 The Health and Disability Commissioner is currently reviewing the Health and Disability Commissioner Act 1994 (the Act) and the Code of Health and Disability Services Consumers’ Rights (the Code). The Act requires the Commissioner to regularly review the Act and Code, consider whether any changes are necessary or desirable, and report the findings to the Minister of Health. 030, 24 Jul 2009 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/227119 Education courses for parents and educators August- November http://www.adsa.org.nz/webapps/i/69075/88360/226501 Registration for courses for parents and educators are being taken now. See "Events" from the menu on the left for further details under 8 October. Flyer to come 030, 20 Jul 2009 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/226501 Bennett relieved of disability portfolio http://www.adsa.org.nz/webapps/i/69075/88360/225539 Social Development Minister Paula Bennett has dropped her additional Disability Issues portfolio because Prime Minister John Key wants her to concentrate on the growing numbers of people losing their jobs. 029, 14 Jul 2009 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/225539 OUTLOOK NEWSLETTER MARCH 2009 EDITION http://www.adsa.org.nz/webapps/i/69075/88360/210391 This is our quarterly magazine full of great articles, news items and personal stories. you will need Adobe to read this pdf file. To contact the Editor, Julie Ngawaka click the link below. 015, 5 Apr 2009 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/210391 Max gets a taste of being a filmstar! http://www.adsa.org.nz/webapps/i/69075/88360/195519 About a month ago we received a call about Max taking part in a documentary about Steve Williams. It is for a show called Beyond the Darklands. By Karen Nyenkamp 049, 3 Dec 2008 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/195519 South Bend man with Down syndrome achieves dream at 13,000 feet http://www.adsa.org.nz/webapps/i/69075/88360/193903 Robbie fulfills his dream to skydive - and wants to do it again! 046, 14 Nov 2008 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/193903 Blood Test to Diagnose Downs Syndrome http://www.adsa.org.nz/webapps/i/69075/88360/189774 Article in "NZ Doctor" about a new, non-invasive technique for diagnosing conditions such as Down syndrome at as early as 14 weeks gestation. 043, 23 Oct 2008 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/189774 James Wants to go to Kindergarten http://www.adsa.org.nz/webapps/i/69075/88360/189213 A link for the Attitude programme screened 12 October 2008 about James Voykovich 042, 17 Oct 2008 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/189213 Consumer Feedback to Ministry of Health http://www.adsa.org.nz/webapps/i/69075/88360/186134 Disability Services of the Ministry of Health is requesting feedback from families and disabled people on the services they provide. Most of these are the services that are received as a result of a Needs Assessment through your local NASC agency. 037, 11 Sep 2008 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/186134 The Red Tape Run Around http://www.adsa.org.nz/webapps/i/69075/88360/185549 Herald Education story- follow-on to the Van Baalen's "Class Action"-more challenges with accessing education for our children. 036, 5 Sep 2008 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/185549 Invitation to participate in education complaint to HRC http://www.adsa.org.nz/webapps/i/69075/88360/183946 On 31 July 2008 IHC lodged a complaint to the Human Rights Commission against government policies and practices that prevent disabled students participating fully at their local school. We are inviting all parents to become involved in the complaint. 035, 26 Aug 2008 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/183946 Class Action http://www.adsa.org.nz/webapps/i/69075/88360/183696 Article from The Aucklander: The Van Baalen family's challenges with the mainstream education system. 034, 21 Aug 2008 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/183696 Activ8 Social Development Programme http://www.adsa.org.nz/webapps/i/69075/88360/182612 A highly acclaimed development programme centred around physical activity, group games, social development & learning activities. 032, 7 Aug 2008 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/182612 Creative Dance & Movement Classes http://www.adsa.org.nz/webapps/i/69075/88360/182653 Creative Dance and Movement is about learning to move in rhythm, understanding space, beat, working with others and creatively expressing yourself. 032, 7 Aug 2008 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/182653 Act Now Rather than Later http://www.adsa.org.nz/webapps/i/69075/88360/229866 SPEAKING clearly and being understood is one of the biggest challenges for children with Down syndrome...... 030, 22 Jul 2008 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/229866 IHC Hot Issues Newsletter June 2008 http://www.adsa.org.nz/webapps/i/69075/88360/179215 Inside the June edition: Sustainable funding: yeah right! The future of disability support services The invisible people Education ministry's commitment to disabled students? Learning opportunities for Ministry of Education Transition to community and work vital Supporting New Zealand's rapid ratification of UN Disabilities Convention Update Last words 027, 3 Jul 2008 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/179215 Eligibility for Household Management Support Clarified http://www.adsa.org.nz/webapps/i/69075/88360/178305 We have received clarification from Taikura Trust around the eligibility for children with disabilities to receive Household Management Support. 026, 25 Jun 2008 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/178305 Who gets born? http://www.adsa.org.nz/webapps/i/69075/88360/178311 A report on the cultural, ethical and spiritual issues raised by pre-birth testing 026, 25 Jun 2008 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/178311 Southern Stars Grant a Wish 2008 http://www.adsa.org.nz/webapps/i/69075/88360/177002 This year Southern Stars Charitable Trust will again be doing an appeal on our behalf, and they have given us the opportunity to have a wish granted for an Auckland child. 023, 6 Jun 2008 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/177002 Fighting for James' Education Rights http://www.adsa.org.nz/webapps/i/69075/88360/173584 A HOWICK mother says the government’s latest move to cut her son’s rights to a fulltime education is an act of discrimination. NO DIFFERENT: Francesca Voykovich, mother of four-year-old James, is fighting for her son's rights to a full education. Times photo Wayne Martin. “They say that our children are entitled to the same rights as everyone else, but it doesn’t work that way. There’s a definite inequality,” says Francesca Voykovich. 020, 14 May 2008 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/173584 New Zealand's Leadership Recognised in New York http://www.adsa.org.nz/webapps/i/69075/88360/173585 New Zealanders are standing tall in New York today with the presentation of the prestigious Roosevelt International Disability Award to the Governor-General at the United Nations this morning. 019, 7 May 2008 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/173585 Herne Bay Petanque Club to Host Tournament in Support of ADSA http://www.adsa.org.nz/webapps/i/69075/88360/172828 Herne Bay Petanque Club, Auckland City, New Zealand to host the 2008 wine doubles petanqye tournament in aid of the Auckland Down Syndrome Association (ADSA) and the New Zealand Down Syndrome Association (NZDSA) 019, 4 May 2008 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/172828 Down's Syndrome Children May Only Need BiFocals For Two Years, Study Suggests http://www.adsa.org.nz/webapps/i/69075/88360/172530 ScienceDaily (May 1, 2008) — Nearly one third of Down's syndrome children who wear bifocal lenses to help them focus accurately may only need to wear them for two years, according to new research from Cardiff University. 018, 1 May 2008 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/172530 IHC Hot Issues Newsletter April 2008 http://www.adsa.org.nz/webapps/i/69075/88360/172826 The latest "HOt Issues" newsletter now available from the IHC 018, 30 Apr 2008 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/172826 Non-Profits Welcome Government’s Carers’ Strategy http://www.adsa.org.nz/webapps/i/69075/88360/172359 The New Zealand Carers Alliance, a coalition of 47 national non-profits supporting families with health and disability needs, has cheered the Government’s launch of a Strategy for the country’s 420,000+ family carers. The Carers' Strategy was launched by the Hon Ruth Dyson on behalf of the Government at Parliament yesterday. 018, 29 Apr 2008 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/172359 McMinnville woman with Down syndrome 'beats the odds' at 73 http://www.adsa.org.nz/webapps/i/69075/88360/172364 When Mary Perry was born with Down syndrome in the 1930s, people with the disability typically didn't live past age 9. At 73, the McMinnville woman has managed to outlive all but one of her eightbrothers and sisters. She is one of the oldest living people with Down syndrome. 018, 29 Apr 2008 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/172364 United Future invites responses to their Disability Discussion Paper http://www.adsa.org.nz/webapps/i/69075/88360/171780 Please attached a discussion document that ADSA has received from United Future. Please be aware that ADSA has no affiliation to any political party and we are only passing the material on to our networks. Responses are required by the end of May 2008. 017, 23 Apr 2008 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/171780 Call for papers and presentations on Trusting Partnerships http://www.adsa.org.nz/webapps/i/69075/88360/171781 Parent to Parent and Standards Plus are co-hosting a conference on 30th October to 1 November 2008 and are calling for papers and presentations on "Trusting Partnerships". The attached brochure provides full details. 017, 23 Apr 2008 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/171781 Ministry of Education seeks feedback on Schools Plus http://www.adsa.org.nz/webapps/i/69075/88360/171240 You may already be aware of the discussion document published by the Ministry of Education called: Schools Plus. It is the government’s blueprint for addressing the high rate of students leaving the education system with minimal or no formal qualifications or training. The proposed policy is to keep all young people in educational programmes, skills training or structured learning, relevant to their needs and abilities, until the age of 18. 016, 18 Apr 2008 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/171240 Skin yields stem cell clue to diseases http://www.adsa.org.nz/webapps/i/69075/88360/171034 Scientists have created stem cells from skin taken from patients with seven different diseases, raising hopes for potential new treatments. Stem cells can transform into any of the 200 or so different cells found in the human body The breakthrough will allow researchers to gain insights into the cause of illnesses including Type 1 diabetes, Down's syndrome and Huntington's disease. 016, 14 Apr 2008 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/171034 IHC Telecom Art Awards 2008 http://www.adsa.org.nz/webapps/i/69075/88360/170537 The IHC Telecom Art Awards were established in 2004 to encourage and recognise creativity from New Zealanders with an intellectual disability. Over the years it has become an important event, with over 600 people entering in 2007. 015, 7 Apr 2008 00:00:00 +1200 http://www.adsa.org.nz/webapps/i/69075/88360/170537 IHC Hot Issues Newsletter March 2008 http://www.adsa.org.nz/webapps/i/69075/88360/169824 The latest "Hot Issues" newsletter from the IHC is available here. 014, 2 Apr 2008 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/169824 Minimum Age for Very High Needs School Leavers Lowered http://www.adsa.org.nz/webapps/i/69075/88360/168458 Students with very high needs will no longer have to stay at school until they're 21 in order to get funding says Social Development and Employment Minister Ruth Dyson. 011, 11 Mar 2008 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/168458 http://www.adsa.org.nz/webapps/i/69075/88360/167865 The latest edition of "Hot Issues" from the IHC. 010, 6 Mar 2008 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/167865 Invitation to Participate in Complaint to Human Rights Commission http://www.adsa.org.nz/webapps/i/69075/88360/166696 IHC is currently preparing a complaint to the Human Rights Commission against practices that exclude disabled children from full participation at their local school. Families are invited to participate in this complaint. 010, 3 Mar 2008 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/166696 PFRC Newsletter March 2008 http://www.adsa.org.nz/webapps/i/69075/88360/166661 The latest newsletter of the Parent and Family Resource Centre is available (click "View PDF" on the right). 010, 3 Mar 2008 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/166661 World Down Syndrome Day 2008 http://www.adsa.org.nz/webapps/i/69075/88360/166680 Down Syndrome International (DSI) has officially earmarked 21, March as World Down Syndrome Day (WDSD). The date was chosen to signify the uniqueness of Down syndrome in the triplication (trisomy) of the 21st chromosome and is used synonymously with Down syndrome. 010, 3 Mar 2008 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/166680 Supplements Don't Work for Down Syndrome http://www.adsa.org.nz/webapps/i/69075/88360/166475 Doctors should alert parents of children with Down syndrome to research showing that giving vitamin and mineral supplements to their child does not improve their condition. 009, 1 Mar 2008 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/166475 IHC to Make Inclusive Education DVD http://www.adsa.org.nz/webapps/i/69075/88360/166108 IHC is looking for examples of primary and secondary schools that are good examples of inclusive education, for a new DVD they are producing. 009, 26 Feb 2008 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/166108 May I have this dance? http://www.adsa.org.nz/webapps/i/69075/88360/163664 For years, Jim Lundquist and Sarah Stanchfield have each wanted to get married; they have seen siblings marry and parents marry. But they wanted to wait until they knew they were right for each other. 007, 15 Feb 2008 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/163664 Learning deficit blocked in mouse model of Down syndrome http://www.adsa.org.nz/webapps/i/69075/88360/163076 DALLAS, Feb. 4 -- The learning deficits of mice with trisomy 21 appear to have been prevented with a peptide combination, investigators said here. 007, 10 Feb 2008 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/163076 Vet Medicine Researcher Examines Link Between Cancer, Down Syndrome http://www.adsa.org.nz/webapps/i/69075/88360/162674 There's new hope for breast cancer research, and it's coming from a very unlikely place. Researchers at the Texas A&M University College of Veterinary Medicine & Biomedical Sciences recently published articles in the journals Molecular and Cellular Biology and Carcinogenesis indicating that a protein long suspected to play a role in Down Syndrome may also contribute to treating this devastating disease. 006, 6 Feb 2008 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/162674 Support Parent Training Dates for 2008 http://www.adsa.org.nz/webapps/i/69075/88360/161922 Parent to Parent are running three training courses for parents who are interested in supporting other parents. The link below provides details of the courses along with a registration form. 005, 29 Jan 2008 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/161922 Numicon kits available on loan http://www.adsa.org.nz/webapps/i/69075/88360/161794 We currently have available two Foundation Numicon kits for loan within the Auckland area. (For home use only please) Foundation stage is the starting kit for the Numicon maths programme and would suit a child from 4yrs +. 004, 26 Jan 2008 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/161794 NZ wins Roosevelt International Disability Award http://www.adsa.org.nz/webapps/i/69075/88360/159915 Disability Issues Minister Ruth Dyson today announced that New Zealand has won the prestigious Franklin Delano Roosevelt International Disability Award for 2007. 002, 10 Jan 2008 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/159915 Down Syndrome Can Suppress Tumor Growth http://www.adsa.org.nz/webapps/i/69075/88360/159709 Using a mouse model, researchers at Johns Hopkins and Ohio State University discovered that some copies of a specific gene can influence the severity of colon cancer... 002, 7 Jan 2008 00:00:00 +1300 http://www.adsa.org.nz/webapps/i/69075/88360/159709