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Welcoming Your New Baby

Congratulations on the birth of your baby
 
With a diagnosis of Down syndrome things will be different from what you had expected. We want you to know that you are not alone and there are people across Auckland who understand the feelings you will be experiencing.
 
We also want you to know that your baby is a precious new life and has the same wants and needs as any other baby. We hope we can help your family celebrate your new baby.
 
When you first hear that your baby has or may have Down syndrome your emotions will take over. Typically the first thing you will want to know is what is Down syndrome and how will it effect your new baby and your family. You may want to know this information all in one go or you may want to find out this information in stages. Everyone is different in how they absorb this information and there is no right way or wrong way.
 
There is a huge amount of information about Down syndrome. You can find this information in books, publications and from many, many websites.
 
As a first place to start however ADSA can provide you with an information pack put together by the New Zealand Down Syndrome Association. We can post it to you or organise to deliver it to you personally by another parent who has experienced what you are currently experiencing. Just let us know what will suit you best.
 
In the meantime if you would like a general overview on Down syndrome then please read on. If you would like really detailed information on Down syndrome then we have provided a list of links below as well.
 
What is Down syndrome?
Down syndrome is a genetic condition that occurs as a result of an extra chromosome. It is not an illness or disease.
 
The human body is made up of millions of cells. In each cell there are 23 pairs of chromosomes (equaling 46 chromosomes in total) half of which have come from mum and half of which have come from dad.  Down syndrome is caused by the occurrence of an extra copy of chromosome 21 (the medical term for Down syndrome is Trisomy 21). This means that people with Down syndrome are like everybody else but instead of having 46 chromosomes in each of their cells they have 47 thanks to the presence of three copies of chromosome 21 instead of two.
 
Down syndrome was first described in detail by an English doctor, John Langdon Down, in 1866 (hence the name). While the common characteristics of people with Down syndrome were described in the 19th century it wasn’t until 1959 that a French doctor, named Jerome Lejeune, discovered that Down syndrome was caused by the inheritance of an extra copy of a chromosome. It affects 1 out of every 800 to 1,000 babies born.
 
We do not know why Down syndrome happens. We know it occurs at conception and it can happen to anyone no matter what ethnic, social or age group of the parents. We also know that it is not caused by anything the parents may have done before or during pregnancy.
 
Down syndrome is usually recognisable at birth. People with Down syndrome do have features in common and doctors and medical specialists will look at these as an indicator.  A diagnosis is confirmed however by a blood test where a specialist takes a look at your baby’s chromosomes under the microscope and confirms if there is an extra copy of chromosome 21.  
 
Even though your babies' features will have similarities with other people with Down syndrome your baby will also resemble you, your family and his/her brothers and sisters. While there are many characteristics common to people with Down syndrome your baby is an individual, with a unique appearance, personality and a set of abilities. At first the label “Down syndrome” will seem larger than your baby but as your baby grows and develops and reaches the milestones at his or her own pace his or her personality traits will become more pronounced and soon you just see your baby more as the individual he or she is.
 
For further general information and reading about Down syndrome go to:

brightertomorrows.org/
 
nzdsa.org.nz
 
For access to a New Zealand special needs community have a look at:
 
community.upsideofdown.co.nz/
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zeald FoundationNorth-25-160 Grassroots LOGO LARGE-597 Auckland Council cogs      
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Contact:
09 527 0060
Monday - Friday: 9.30am - 2.30pm
Level 3, 45 Mt Wellington Highway
Mount Wellington
clo@adsa.org.nz