donate

A mother's perspective on Down syndrome and diagnosis

A series of thirteen video clips, relevant to health professionals, featuring Melanie Mora and her family. Mel is mother to three boys - Jamie, Ryan and Ethan. Her middle son Ryan was diagnosed post-birth with Down syndrome.

The first nine video clips feature Mel in an interview, introducing her family and talking about her experience of receiving an unexpected post-birth diagnosis of Down syndrome for her second son Ryan.

The last three video clips feature an edited version of Mel's Paediatric Update presentation,13 April 2011.
 
Melanie Mora introduces her family


Melanie Mora introduces her family - husband Richard and their three sons, Jamie, Ryan and Ethan. Her second son Ryan was diagnosed post-birth with Down syndrome.

Back to top ↑
 
Mel's experience of a post-birth diagnosis of Down syndrome


Mel talks about her experience of receiving an unexpected diagnosis.

Back to top ↑
 
The first 24 hours after diagnosis


Mel talks about her feelings and reactions in the first 24 hours after the unexpected diagnosis.

Back to top ↑
 
Being positive


Early on, following the diagnosis, Mel and her husband put on a brave face and projected positivity because they knew others would take their cues from them.

Back to top ↑
 
How others see Ryan


Mel discusses other children's reactions to Ryan. She says that kids don't see the same differences that adults do. Mel thinks that as each generation comes through with more exposure to the host of health issues that are out there facing children, there'll be more empathy and they'll be better people for it.

Back to top ↑
 
The challenges


Mel talks about the challenges associated with raising Ryan.

Back to top ↑
 
Mel describes her parenting style


Mel says one of the hard things about having a child with special needs is that you become more conscious as a parent. More input is required to help your child meet developmental milestones. Mel says the best thing you can do for your child is to let them know they are loved and accepted.

Back to top ↑
 
Impact on Mel and her husband as a couple


Mel discusses how having Ryan has affected her relationship with her husband. She says when you're faced with challenges you dig deep. Mel and Richard's relationship has strengthened as a result.

Back to top ↑
 
The impact on siblings


Mel discusses the impact of having a child with special needs on siblings. She thinks for siblings, learning that everyone is different and has different needs can only be a positive thing.

Back to top ↑
 
The importance of looking after yourself


Mel stresses that when you have a child with special needs, it is particularly important to stay strong, focus on the big picture and look after yourself and your relationship.

Back to top ↑
 
A mother's perspective on Down syndrome and diagnosis


Part one of Mel's Paediatric Update presentation, 13 April 2011.

Back to top ↑
 
Mel's suggestions for health professionals delivering unexpected news


Part two of Mel's Paediatric Update presentation, 13 April 2011.

Back to top ↑
 
Other parents' experiences of receiving an unexpected diagnosis


Part three of Mel's Paediatric Update presentation, 13 April 2011.

Back to top ↑
 
Acknowledgement
Video links included with the permission of www.kidshealth.org.nz. Kidshealth is a joint Paediatric Society of New Zealand and Starship Foundation website, providing accurate and reliable information about children's health for New Zealand parents and caregivers.
Proudly Supported by:
zeald FoundationNorth-25-160 Grassroots LOGO LARGE-597 Auckland Council cogs      
  four wings lions skycity
               
 
 
Contact:
09 527 0060
Monday - Friday: 9.30am - 2.30pm
Level 3, 45 Mt Wellington Highway
Mount Wellington
clo@adsa.org.nz